Copies of all publications can be requested from the first named author, or by emailing


  • Mascalzoni D & Bentzen HB, Budin-Ljøsne I, Bygrave LA, (...), Kaye J. Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?. Ann Intern Med. ;170:332–334. doi: 10.7326/M18-2854

  • Bentzen HB, Høstmælingen N. Balancing Protection and Free Movement of Personal Data: The New European Union General Data Protection Regulation. Ann Intern Med. ;170:335–337. doi: 10.7326/M18-2782


  • Bentzen HB. In the name of scientific advancement. Submitted.


  • Bentzen HB. Context as key: Integrity preservation by means of the purpose limitation principle. To be submitted.


  • ​Goisauf M, Martin G, Bentzen HB, Budin-Ljøsne I, Mascalzoni D, Ursin L, Durnova A, Laitsalu L, Smith K, Casati S, Lavitrano M, Mayrhofer MT. Data in question: A survey of ELSI challenges in biobank-based research. To be submitted


Invited Presentations


  • Bentzen, Heidi Beate. Doing Right: Law and Precision Medicine. The inaugural meeting of The Nordic Society for Precision Medicine; DeCODE, Reykjavik, Iceland, 2018-06-07 - 2018-06-08


  • Bentzen, Heidi Beate. Personvern og datadeling i medisinsk og helsefaglig forskning. Forskningsetisk forum 2018; Oslo, Norway, 2018-09-18


  • Bentzen, Heidi Beate. Shedding Light on Legal Aspects of Genetic Data Processing in the Cloud. EHiN 2018 Norges nasjonale e-helsekonferanse; Oslo, Norway, 2018-11-13


  • Bentzen, Heidi Beate. Doing Right: Law and Precision Medicine. Det 10. nasjonale fagmøtet i genetikk; Oslo, Norway, 2018-11-15


  • Bentzen, Heidi Beate. Formålsbestemthet. Om prinsippet og implikasjonene av prinsippet. Personvernkonferansen; 2018-12-07

Conference Presentations


  • Session chair: Brave New World: Learning Health Systems. Helsam sommerseminar 2018: Pandora’s Box: New Health Technologies; Oslo, Norway, 2018-06-04



Media Appearances